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Yohan’s Surgery #11: How to Make Life “Fun” in a Cast

  So many things can go so wrong when you are in a cast. I’m about to tell you true stories. I wish they were not true, but they are. Here is a glimpse of my everyday chaotic life, which is simply an extension of my absent-minded, distracted brain. Quite surprisingly, Yohan did not end Read More…

NEWS FLASH! CMT Experts to Take Part in Vermont CYCLE 4 CMT

  Register to Ride with World-Renowned CMT Experts On one day, and one day only, 3 big names in the field of CMT will come together, under one roof, to participate in the Cycle 4 CMT event in Charlotte, VT. They want to meet you, bike with you and talk to you about CMT and Read More…

The Power of One – Don’t Just Sit There, Do Something!

This is my brother, Chris. He’s the organizer, the motivator, the visionary behind the Vermont Cycle 4 CMT event, which is now in its 3rd year. He’s a wonderful uncle, a cherished sibling and one of the kindest and most thoughtful people I know. He is dynamic, super tidy, business-savvy and always knows where his Read More…

Yohan’s Surgery #10: If You Can’t Beat ‘Em, Join ‘Em

  Due in part to the effects of his CMT, Yohan has never been particularly athletic. When he was young, he enjoyed swimming lessons, played tennis and racquetball, kayaked and camped with his dad. He even learned to ride a horse. As he got older, fatigue, sprained ankles and nerve pain became limiting factors to Read More…

Third annual Cycle 4 CMT ride August 28

Originally Published by The Citizen Cycle 4 CMT is a fundraising cycling event for individuals with CMT disease (Charcot-Marie-Tooth). CMT is a progressive neurological disease that affects 2.8 million people worldwide. It often severely impairs the use of one’s hands, arms, feet, and legs as a result of peripheral nerve damage. There is no cure Read More…

Yohan’s Surgery #9: The Journey Ahead

Thanks to 9 different procedures, over 100 stitches and 7 long hours of surgery, Yohan has a new foot underneath that cast. A foot that is straighter, more functional and completely reconstructed. And the journey has just begun. In August, he can put weight on the foot. And then there will be months of rehabilitation Read More…

Yohan’s Surgery #7: The CMT Inaccessible Home

  I hate to say it, but Yohan was right. Our house is unequivocally inaccessible. Sad thing is, I was totally and completely oblivious. Since we have no inside stairs and there are only a couple of steps leading into the house, I never thought twice about just how hard it is to get into Read More…

Yohan’s Surgery #6: Honest Pee

  Walking around with CMT can be hard enough, but when you have one foot, weighted down by a cast, off the ground entirely, and the other foot, affected by CMT (pain, high arches, weak ankles, limited or no ability to lift the foot when taking a step), getting around is like playing a game Read More…

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