NEW FOR 2018! VIRTUAL CYCLE OR WALK 4 CMT. SEE DETAILS HERE

Latest News

Fifth Annual Cycle 4 CMT Tackles Rare Disease

Charlotte, Vermont –Walkers and cyclists will take to the gorgeous country roads of Northern Vermont on August 26 for the 5th Annual Cycle 4 CMT. Everyone is welcome to participate in the event, which raises research funds for Charcot-Marie-Tooth disease (CMT), a progressive neurological disease that damages the long nerves to the hands and feet, eventually Read More…

CMTA STAR UPDATE – Your Dollars at Work!

Neurologist: Well, he has CMT and yes, it gets worse over time.

Me: Silence

Neurologist: There is really nothing much you can do about it.

Me – Silently feeling FREAKED OUT!

Neurologist: Young man, at the beginning of the game, you are dealt a specific hand of cards. Some people receive a great hand, and others, well, others get cards that kind of suck . . . Read More >>>

 Read More…

Johan Update, Cycle4CMT

Yohan Update- Ironing out the Wrinkles

“These shirts look perfectly fine. Why do I have to iron them?” Yohan asked with his serious face. As he held the shirts at arm’s length and brought them closer to his eyeballs, squinting to make out the crinkles, I pointed the way to the iron and ironing board.

Still not game, he shared an idea, Read More >>> Read More…

Johan Update 2, Cycle4CMT

Where Is He Now?

Yohan is now at Claremont Graduate School in southern California, studying Industrial Psychology. He is getting around campus without crutches, leg braces, or a wheelchair – he’s actually walking on his own 2 feet!  In fact, he’s walking A LOT!! Finding his way around the first day of classes was physically and mentally exhausting, and Read More…

Vermont’s 4th Annual Cycle (And Walk!) 4 CMT Raises $215,000

By: Elizabeth Ouellette The Cycle (And Walk!) 4 CMT event took place on Sunday, August 27, 2017, in Charlotte, VT at the Old Lantern Inn and Barn. We have some great news – we met and surpassed all expectations by bringing in over $215,000 for CMT research. This year, we had 150 attendees, 400+ donors, Read More…

Gear Up For the Cycle 4 CMT and Watch Our TV Commercial!

Cycle 4 CMT Gearing up for the Cycle (And Walk!) 4 CMT Event Have you seen our promo TV Spot? WCAX-TV, whose coverage extends throughout Vermont, New York, Montreal and Canada, has just put together our first-ever television commercial to raise awareness about CMT and the Cycle (and Walk) 4 CMT  event in Charlotte, VT Read More…

A Shout Out To Our Sponsors and Supporters

This year, come out to cycle one of four beautiful cycling routes that travel through the scenic Vermont towns of Shelburne, Charlotte and Hinesburg. All routes take cyclists over a covered bridge offering beautiful views of the Adirondack Mountains while experiencing the rolling hills and farm country of Charlotte VT. Read More…

Surgery, Smurgery: What Are We Going To Do About That Beard?

Same foot.  Same surgeon. Similar surgery. Different results!!!!!! The recovery experience, so far, has been nothing, and I mean nothing like the first surgery in June of 2016, which is the best news ever. And this is how I’m feeling about that: We took preemptive measures: The anesthesiologist beefed up the nerve block so it Read More…

Cadavers Save Lives: True Story!

UPDATE! Yohan had his second  7-hour surgery ( a redo of his left foot) on Wednesday, March 29 at Cedars-Sinai, in LA with Dr. Glenn Pfeffer. As you may have guessed, his first surgery was not successful. We will probably never really know why, but apparently, some of Yohan’s muscles in his lower leg were Read More…

Second Surgery, Same Foot: Déjà Vu?

Second Surgery, Same Foot I started writing this post last night, as a way of  getting my feelings out and on “paper.” But, the more I wrote, the worse  I felt. I shut down my computer and used my “call a friend” coupon. When feeling blah, I usually hide in a shell, stick my head Read More…

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