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Gear Up For the Cycle 4 CMT and Watch Our TV Commercial!

Cycle 4 CMT Gearing up for the Cycle (And Walk!) 4 CMT Event Have you seen our promo TV Spot? WCAX-TV, whose coverage extends throughout Vermont, New York, Montreal and Canada, has just put together our first-ever television commercial to raise awareness about CMT and the Cycle (and Walk) 4 CMT  event in Charlotte, VT Read More…

A Shout Out To Our Sponsors and Supporters

This year, come out to cycle one of four beautiful cycling routes that travel through the scenic Vermont towns of Shelburne, Charlotte and Hinesburg. All routes take cyclists over a covered bridge offering beautiful views of the Adirondack Mountains while experiencing the rolling hills and farm country of Charlotte VT. Read More…

Surgery, Smurgery: What Are We Going To Do About That Beard?

Same foot.  Same surgeon. Similar surgery. Different results!!!!!! The recovery experience, so far, has been nothing, and I mean nothing like the first surgery in June of 2016, which is the best news ever. And this is how I’m feeling about that: We took preemptive measures: The anesthesiologist beefed up the nerve block so it Read More…

Cadavers Save Lives: True Story!

UPDATE! Yohan had his second  7-hour surgery ( a redo of his left foot) on Wednesday, March 29 at Cedars-Sinai, in LA with Dr. Glenn Pfeffer. As you may have guessed, his first surgery was not successful. We will probably never really know why, but apparently, some of Yohan’s muscles in his lower leg were Read More…

Second Surgery, Same Foot: Déjà Vu?

Second Surgery, Same Foot I started writing this post last night, as a way of  getting my feelings out and on “paper.” But, the more I wrote, the worse  I felt. I shut down my computer and used my “call a friend” coupon. When feeling blah, I usually hide in a shell, stick my head Read More…

CMTA: Turning Science into Therapies

On Saturday, March 18, the CMTA put on a Patient/ Family Conference in collaboration with the University of Miami. We had a wonderful turnout, with people from all over the world in attendance. Gilles Bouchard, the CMTA’s Board Chair, explained progress to date on CMTA-funded research. I wanted to share my notes with You! In Read More…

Yohan’s Surgery #14: Caution: Foot Surgery Can Cause Insanity

  I just took the sanity test on the internet and despite what you might think, I am NOT crazy. According to the quiz, I am sane, which is a huge relief because now I don’t have to take bust and waist measurements for my custom-made strait jacket. Doubts about my sanity came to a Read More…

Yohan’s Surgery #13: Hans, the Finger and the Dike

  Since Yohan had his cast removed last Thursday, I feel like that Dutch kid, Hans, whose dike-plugging skills prevented a disastrous flood from annihilating his village. Here’s why: Dr. Pfeffer told us at least 99 times that when the cast comes off and the walking boot goes on, “Yohan’s foot is not allowed to Read More…

Yohan’s Surgery #12: My Spiel about Peel

False alarm! We thought the cast was coming off, and it did, for about 30 minutes, before they slapped another one right back on his foot. And what’s with adult orthopedics? The available colors are so exceedingly boring! They did offer pink, orange, black, dark blue…. Yawwwwwn. Yohan wanted tie-dye, rainbow, flames or even animal Read More…

YOU Are Superheroes- Here’s Why

YOU are a Superhero The forces of good are gathering in a small town in Vermont to fight CMT. On Sunday, August 28, men and women from all over the USA are joining the ranks of extraordinary superherodom, as they ride like the wind to cure CMT. Don’t forget: you don’t have to have mind-blowing Read More…

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